Why tell asymptomatic children of the risk of an adult-onset disease in the family but not test them for it?

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Title

Why tell asymptomatic children of the risk of an adult-onset disease in the family but not test them for it?

Content partner

The University of Auckland Library

Collection

ResearchSpace@Auckland

Description

This paper first considers why it is important to give children genetic information about hereditary conditions in the family, which will go on to affect their lives in a salient way. If it is important to inform children that they are at risk for an adult-onset disease that exists in the family, why should they not also grow up knowing whether they actually carry the genetic mutation? Central to this discussion is the importance of the process of disclosure and the environment in which genet...

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Format

Research paper

Research format

Journal article

Date created

2006

Creator

Malpas, Phillipa

URL

http://hdl.handle.net/2292/12798

Related subjects

Age of Onset / Child / Child Psychology / Family Health / Genetic Diseases, Inborn / Genetic Predisposition to Disease / Genetic Testing / Heterozygote / Humans / Professional-Patient Relations / Self Concept / Truth Disclosure

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