Family Living with Rare Genetic Condition

About this item

Title

Family Living with Rare Genetic Condition

Content partner

AttitudeLive

Collection

AttitudeLive YouTube

Description

Joe Boon is turning 30. It’s a milestone for anyone, but particularly for Joe and his family, who carry a rare genetic and degenerative condition that carries a life expectancy of just 37. Three out of five siblings - including Joe - have Friedreich's Ataxia, which gradually attacks the neuromuscular system. Not diagnosed until their teens and early 20s, the family have battled to cope with the implications of the disease - each one handling it differently. Follow Us on Facebook: https://www....

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Format

Video

Date created

29 August 2020

URL

https://www.youtube.com/watch?v=zh1vGDrTC3I&feature=youtube_gdata_player

Related subjects

AttitudeLive / Disability / rare disease / rare diseases documentary / friedrichs ataxia / family with disability / neuromuscular disease / rare genetic condition / disability documentary / friedreichs ataxia video / friedreichs ataxia speech / rare disability list / friedreichs ataxia walking / friedreichs ataxia physical therapy / friedreichs sign / friedreichs ataxia cure / friedreich’s ataxia / my perfect family / friedreich's ataxia / attitude tv / friedreich ataxia / attitude live

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